a) Understanding Albinism
This project is a partnership between PE-Kenya and the Open Society Initiative for East Africa aimed at heightening understanding albinism among persons with albinism, their care givers and service providers in Nairobi & Nyeri counties and their Environs.
It involves focus group discussions for need analysis among the albinism community, followed by training forums in the same areas with tailored content that bridges and fills the knowledge gaps identified in the need analysis forums.
It also includes heightened sensitization of the International Albinism Awareness Day - IAAD through massive awareness, publicity and distribution of awareness material to the public.
Implementation levels( Report to be provided in resources and a link put here. )
b) Climb for Albinism (CLA)
The Climb for Albinism is an awareness and empowerment initiative which saw six women with albinism from across Africa scale up Mount Kilimanjaro, Africa’s highest mountain, from 1st to 7th October 2018. The aim of the climb was to shift public perceptions on persons with albinism from victim hood to empowerment by displaying their capabilities, while consciously raising awareness about challenges persons with albinism often face.
The movement, “Climb for Albinism” was co-created in February 2016 by human rights activist, speaker and change agent, Jane Waithera and adventure filmmaker, speaker and high-altitude climber Elia Saikaly.
In May, the whole team met for the first time and climbed Mount Kenya, as a warm up.
From February 2018 to September 2018, Elia Saikaly travelled to Kenya, Tanzania, South Africa, Senegal and Nigeria, to film pre-climb footage, including each climber’s story, as told by the climber and her family and friends. In October, the team climbed Mount Kilimanjaro. The documentary is in the pipeline.( Link Climb for albinism page )
c) Albinism & I
This is an innovation between PE-Kenya and Boehringer Ingelheim a German pharmaceutical company.
The albinism and I Mobile site is a tool of knowledge whose purpose is to create awareness and disseminate relevant information on understanding albinism through literature, animation and podcasts.
The platform will have a linkage to social media API for story and experience sharing in a cohesive network of PWA, family and professionals. In addition, it will include a mentorship program/platform in which PWA can connect virtually or link up. P.E-Kenya deems education as the biggest driver of advocacy on issues that pertain to albinism and specifically availing the correct knowledge resources to the right audience.
The APP will go a long way in reaching out and bringing together a wider community to start with at a national level into a safe and free space where PWA can engage and find solutions on matters on health, education and social empowerment.
Implementation levels………. ( to be updated)
d) Art for Albinism
This is the utilization of art for albinism awareness and advocacy including and not limited to use of short documentaries and photo exhibits. We do exhibitions, theatre plays and screen short documentaries to start the albinism conversation .
We are currently working on a concept to provide understanding albinism facts in an artistic way.
1. Albinism Awareness & Advocacy (AAA)
PE-Kenya champions albinism awareness by passing on knowledge and understanding of this subject matter to all stakeholders in the albinism community and the public in general. Advocacy further heightens this by taking awareness to another level by speaking up and asking for specific actions to be taken for the albinism community. This is done through providing the right information and facts on albinism, empowering the albinism community at the base, conducting educative forums and lobbying to influence legislation and policies.